2022/04/04 by Heidi M. Munger Clary, Heidi Munger Clary, S. Andrew Josephson +14 · 32 citations
Engineering · Medicine · Psychology · #Computer science #Documentation #Engineering #Epilepsy #Epilepsy research and treatment #Epileptic seizure #Medicine #Neonatal and fetal brain pathology #Neurology #Pharmacological Effects and Toxicity Studies #Physical therapy #Psychiatry #Psychology #Quality (philosophy) #Set (abstract data type) #Work (physics)
paper · pdf · doi:10.1212/wnl.0000000000200239
published in Neurology 98(14), 583-590 (Lippincott Williams & Wilkins)
openalex publication_date 2022/04/04 · openalex created_date 2022/05/05 · openalex updated_date 2026/07/28
Seizure freedom is the goal for patients who experience seizures and the physicians and treatment teams who provide care for these patients. In 2017, the American Academy of Neurology Institute (AANI) seated a standing epilepsy quality measure development work group charged with developing appropriate quality improvement measures for patients with epilepsy who experience seizures. In 2018, the work group released an updated epilepsy quality measurement set that included the seizure frequency measure initially published in the 2014 measurement set.1,2 In the 2018 publication, the work group noted that future effort was needed to move toward a more standardized capture of seizure frequency.1 Specifically, a lack of uniformity and consistency in documentation of seizure frequency contributed to poor feasibility of the 2014 seizure frequency measure; this is also a barrier to uniform tracking of seizure frequency for seizure outcome measure collection.1 In spring 2019, the work group determined the time was ripe to move forward to develop quality measures that would help address the gap in measuring seizure frequency for patients with epilepsy and directly capture seizure outcome data.