Preliminary Validity and Reliability of the Sickle Cell Disease Health-Related Stigma Scale

2012/05/24 by Coretta Jenerette, Cheryl A. Brewer, Jamie Crandell +1 · 1 citation
Health Professions · Medicine · #Food Security and Health in Diverse Populations #Hemoglobinopathies and Related Disorders #Iron Metabolism and Disorders

paper · doi:10.3109/01612840.2012.656823

openalex publication_date 2012/05/24 · openalex created_date 2025/10/10 · openalex updated_date 2026/07/30

Abstract

There have been no published studies that measure health-related stigma in individuals with sickle cell disease (SCD). This study provides preliminary validity and reliability of the Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS). Using a sample of 77 young adults with SCD, ages 18-35 years, the results support the reliability of the SCD-HRSS with an overall Cronbach's alpha reliability of 0.84 and construct validity with a positive correlation between SCD-HRSS and a measure of depressive symptoms. Participants reported the highest levels of perceived stigma from the general public, then doctors, and lastly family. Limitations and directions for future research are discussed.

Cited by

• Stigma of Sickle Cell Disease: A Systematic Review

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