Stigma of Sickle Cell Disease: A Systematic Review

2018/04/13 by Dominique Bulgin, Paula Tanabe, Coretta Jenerette · 1 citation
Medicine · Psychology · #HIV/AIDS Research and Interventions #Hemoglobinopathies and Related Disorders #LGBTQ Health, Identity, and Policy

paper · doi:10.1080/01612840.2018.1443530

openalex publication_date 2018/04/13 · openalex created_date 2025/10/10 · openalex updated_date 2026/07/30

Abstract

The aim of this systematic review was to synthesize the literature regarding health-related stigma in adolescents and adults living with sickle cell disease (SCD). Four domains were identified from 27 studies: (1) social consequences of stigma; (2) the effect of stigma on psychological well-being; (3) the effect of stigma on physiological well-being; and (4) the impact of stigma on patient-provider relationships and care-seeking behaviors. Current literature revealed that SCD stigma has detrimental consequences. Methodological issues as well as research and practice implications were identified. Future research should further examine the impact of health-related stigma on self-management of SCD.

Citations

• Preliminary Validity and Reliability of the Sickle Cell Disease Health-Related Stigma Scale
• Management of Sickle Cell Disease
• The impact of race and disease on sickle cell patient wait times in the emergency department

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• Implicit bias in pain management: The intersection of stigma, race, and chronic disease in sickle cell disease