2025/10/16 by Gille, Felix, Daniore, Paola, Maaß, Laura +1
Health Professions · Social Sciences · #Access Control and Trust #E-Government and Public Services #Electronic Health Records Systems #evaluation #health data space #performance indicator #stress testing #trust
paper · doi:10.5167/uzh-281010
openalex publication_date 2025/10/16 · openalex created_date 2025/12/11 · openalex updated_date 2026/07/28
The development of trustworthy Health Data Spaces (HDS) is currently in the spotlight of digital health policy. Diverse stakeholders agree on the importance of trust for the adoption and legitimacy of HDS. This emphasis on trust has led to the development of conceptual work describing what trust in HDS entails, along with initial suggestions on how trust principles can be operationalized in HDS governance and architecture. In contrast, little research has been conducted on methods to evaluate the performance of trust-building principles and the overall trustworthiness of HDS. In response, we propose two distinct methodologies that share a common focus on assessing trustworthiness: A) Trust Performance Indicators collect routine data related to trust-building principles. B) Trust Stress Tests support the design of resilient HDS architectures by identifying potential future scenarios that could undermine their trustworthiness. Through these methodologies, we aim to contribute to the ongoing development of trustworthy HDS.