2025/06/21 by Valliani, Arafaat, Turin, Tanvir C.
#Community Engagement #Ethnic Minority #Immigrant #Inclusive #Newcomer #Participatory #Power Informed #Racialized #Transdisciplinary #Visible Minority
paper · doi:10.11575/prism/49525
Introduction: Human genomics, and by extension precision health, is currently encountering calls to consistently include racialized communities whom, so far, are unevenly involved in this area of health research, care and wellness. In this paper, we discuss the context in which concerns about inclusion in recent human genomics research emerged and how inclusion may be undertaken. Methods/Approach: Employing transdisciplinary methods from post- and de-colonial science studies, we review the existing literature regarding human genomics, precision health, health disparities and histories of biomedicine in global context, in addition to drawing on collected archival material and anecdotal evidence collected from open-ended ethnographic interviews to chart the bioethical issues involved in introducing precision health to clinical settings particularly for members of racialized communities. Results/Conclusion: We suggest that the future of equitable genomic research and precision health involving racialized communities must be both inclusive and equitable. One dimension of equity on which we focus comprises genetic data governance among researchers and participating communities.