Development of a Stakeholder Driven Serious Illness Communication Program for Advance Care Planning in Children, Adolescents, and Young Adults with Serious Illness

2020/09/16 by Danielle D. DeCourcey, Lindsay Partin, Anna Revette +2 · 25 citations
Medicine · #Childhood Cancer Survivors' Quality of Life #Palliative Care and End-of-Life Issues #Ethics and Legal Issues in Pediatric Healthcare

paper · doi:10.1016/j.jpeds.2020.09.030

Cited by

• Improving Advance Care Planning for Seriously Ill Children: Engaging a Diverse Research Population Early and Often. [europepmc]
• Advance care planning for adolescents with cancer and their parents: study protocol of the BOOST pACP multi-centre randomised controlled trial and process evaluation. [europepmc]
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• Bereaved Parent Perspectives on End-of-Life Conversations in Pediatric Oncology. [europepmc]
• A Support System for Adolescent and Young Adult Patients with Cancer at a Comprehensive Cancer Center. [europepmc]
• Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases. [europepmc]
• Patient Identification for Serious Illness Conversations: A Scoping Review. [europepmc]
• An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial. [europepmc]
• The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility. [europepmc]
• Organizational readiness to implement the Serious Illness Care Program in hospital settings in Sweden. [europepmc]
• Conceptualising paediatric advance care planning: a qualitative phenomenological study of paediatricians caring for children with life-limiting conditions in Australia. [europepmc]
• Adolescent and Young Adult Initiated Discussions of Advance Care Planning: Family Member, Friend and Health Care Provider Perspectives. [europepmc]
• Effect of the Family-Centered Advance Care Planning for Teens with Cancer Intervention on Sustainability of Congruence About End-of-Life Treatment Preferences: A Randomized Clinical Trial. [europepmc]
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• Adaptation of a Serious Illness Communication Training Intervention for the Rwandan Context. [europepmc]
• Nurses' experiences of end-of-life communication with children who have life-threatening conditions in paediatric intensive care units: a qualitative descriptive study. [europepmc]
• Palliative Care and Decision for Terminal Cardiopulmonary Resuscitation in the PICU: Single-Center, Retrospective, Mixed-Methods Analysis, 2013-2022. [europepmc]