2006/10/13 by Lesa Hoffman, Janet Marquis, Denise Poston +3 · 479 citations
Medicine · Psychology · #Cerebral Palsy and Movement Disorders #Clinical psychology #Confirmatory factor analysis #Construct validity #Convergent validity #Developmental psychology #Down syndrome and intellectual disability research #Family and Disability Support Research #Family life #Psychology #Psychometrics #Quality of life (healthcare) #Reliability (semiconductor) #Scale (ratio) #Structural equation modeling #Test validity
paper · doi:10.1111/j.1741-3737.2006.00314.x
published in Journal of Marriage and the Family 68(4), 1069-1083 (Wiley)
openalex publication_date 2006/10/13 · openalex created_date 2025/10/10 · openalex updated_date 2026/07/28
There is currently a lack of reliable scales with which to assess the construct of family quality of life, particularly for families who have children with disabilities. The current work presents 2 studies, including a total of 488 families with children with disabilities, which were conducted to complete the development of a scale to assess family quality of life. The measure was refined through confirmatory factor analyses into 25 items that assess 5 domains of Family Quality of Life: Family Interaction, Parenting, Emotional Well‐Being, Physical/Material Well‐Being, and Disability‐Related Support. Each subscale was found to be unidimensional and internally consistent. An initial examination of test‐retest reliability and convergent validity is also presented. Implications for future research, scale use, and policy are discussed.