2025/12/13 by Robert Henry, Chelsea Gabel, Caroline Tait +2 · 1 voice
Computer Science · Health Professions · Social Sciences · #Corporate governance #Data collection #Data governance #Focus (optics) #Health data #Indigenous #Indigenous Health, Education, and Rights #Indigenous Studies and Ecology #Information governance #Research Data Management Practices #Sovereignty
paper · doi:10.1093/heapro/daaf229
openalex publication_date 2025/12/13 · openalex created_date 2026/01/14 · openalex updated_date 2026/07/28
Population-level data collection is crucial to advance Indigenous rights and sovereignty but requires localized approaches to develop representative datasets. In Canada, a focus on First Nations research and data governance and principles has led to the underrepresentation of Métis realities and a reliance on data governance models that fail to address their unique cultural, historical, and community-specific needs. "The Saskatchewan Métis Health Research and Data Governance Principles©" were developed to guide Métis research and promote Métis data sovereignty. While these principles share similarities with the First Nations Principles of OCAP®, they emphasize Métis-specific priorities such as capacity building and active engagement with Métis rights holders. These principles provide a framework for Métis health research, ensuring that Métis values and perspectives are embedded throughout the research lifecycle.