2025/11/27 by Anne‐Marie Martin, Anna Broderick, Maria Caples +9 · 1 voice
Health Professions · Medicine · Social Sciences · #Disability Rights and Representation #Down syndrome and intellectual disability research #Health Literacy and Information Accessibility
paper · pdf · doi:10.1111/bld.70017
openalex publication_date 2025/11/27 · openalex created_date 2025/11/28 · openalex updated_date 2026/07/28
ABSTRACT Background People with intellectual disabilities face challenges accessing and understanding health information, impacting their ability to make informed lifestyle decisions. A tailored health education resource was developed to address this need through a collaborative public and patient involvement approach. Methods This mixed‐method pilot study explored the usability of a tailored health education resource from facilitators' perspectives. Eleven social‐care workers implemented it over 8 weeks in community hubs. Data were collected via focus groups, journals and a questionnaire and analysed via thematic analysis and descriptive statistics. Findings The resource was effective and adaptable, enhancing learner engagement through multi‐modal strategies. Facilitators valued its flexibility but noted challenges with mixed‐ability groups and age‐appropriate materials. Conclusions The resource aids facilitators in teaching health concepts to people with intellectual disabilities. Modifications were suggested regarding some terminology and the inclusion of guidance on group composition. The study underscores the need for accessible, age‐appropriate information for this population.