Lived experience-informed eating disorders research: an illustrative example

2025/02/27 by Andrea Phillipou, Shannon Calvert, Kathleen de Boer +8 · 1 voice · 3 citations
Psychology · #Diversity and Impact of Dance #Eating Disorders and Behaviors #Mental Health Research Topics

paper · doi:10.1080/10640266.2025.2471220

openalex publication_date 2025/02/27 · openalex created_date 2025/10/10 · openalex updated_date 2026/07/28

Abstract

The mental health field, and more recently, the eating disorders field specifically, has witnessed a paradigm shift towards collaborative research which is conducted in partnership with individuals possessing lived and living experiences of mental health conditions (i.e. those with personal lived or living experience and those who are family, carers, or other supports). However, despite this shift, the challenge of engaging individuals with lived experiences in a manner that avoids tokenism, manages power imbalances, and ensures meaningful involvement persists. This paper aims to encourage those working in the eating disorders field to establish authentic, equitable partnerships with lived experience contributors. To provide clarity and to encourage researchers to engage in effective and authentic lived experience collaborations, this paper describes different types of lived experience involvement in research, using real-life examples from a study that is currently being established.

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Discussions

• We are very excited to share our 📢NEW PUBLICATION📢 on lived experience involvement in eating disorders research. We highlight the benefits of collaborating with people with lived experience and prov [bsky, 4 points, 1 comments]

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