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Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines

2024/12/21 by Emy Nimbley, Ellen Maloney, Karri Gillespie-Smith +31 · 2 citations
Neuroscience · Medicine · Psychology · #Autism Spectrum Disorder Research #Child Nutrition and Feeding Issues #Obsessive-Compulsive Spectrum Disorders

paper · doi:10.1080/10640266.2024.2441540

Abstract

There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this field, it is imperative that we actively engage in co-production of research, however there are currently no guidelines to support co-production with autistic people with eating disorders. This paper reports on best practice guidelines that were co-produced across a series of workshops bringing together autistic people with EDs, researchers, clinicians, third-sector organisations, and parents/carers. The guidelines are intended to be used as a foundation for future co-produced autism and ED research. By creating a trusted, ethical co-production relationship, we hope to generate more clinically meaningful and translatable research.

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