2014/12/30 by Johannes Bükki, Georg Nübling, Stefan Lorenzl
Health Professions · Medicine · #Cerebral Palsy and Movement Disorders #Dysphagia Assessment and Management #Parkinson's Disease Mechanisms and Treatments
paper · doi:10.1177/1049909114565110
openalex publication_date 2014/12/30 · openalex created_date 2016/06/24 · openalex updated_date 2026/08/01
BACKGROUND: Progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) are characterized by rapid deterioration and a fatal outcome. OBJECTIVES: Admission triggers, treatment efficacy, and care patterns. METHODS: Retrospective analysis of patients with PSP/CBD admitted to an inpatient specialized palliative care service. RESULTS: In 38 patients, there were 63 admissions for swallowing difficulties, falls, pain, impaired communication, cognitive/mood disturbances, respiratory symptoms, and infection. Mean length of stay was 11.6 days. Treatment response was variable. In 68%, of admission episodes there was stabilization or improvement, 75% were discharged home. In case of readmission, the mean interval has been 9.7 months. Time since diagnosis and admission triggers were not associated with outcome or death. CONCLUSION: Patients showed high symptom load contrasting with discharge rates and subsequent health care utilization. Brief multidisciplinary interventions might be helpful to preserve autonomy.