2024/08/10 by Reboucas, Tatyane Oliveira, Lucilane Maria Sales Da Silva
#Care line #Health Care Policy #Hemophilia #Medicine and Health Sciences #Public Policy
paper · doi:10.17605/osf.io/k2a3h
Access to healthcare is one of the most important issues of our era and has been a central topic of discussion at the World Health Organization (WHO) and the United Nations (UN). These entities have called on countries around the world to urgently implement models and policies that guarantee their citizens' access to quality healthcare. Hemophilia A and B are characterized by deficiency of coagulation Factor VIII and FIX, respectively. They are hereditary conditions considered rare. Brazil is the fourth largest hemophilia population in the world, with 9,785 people affected. The Ministry of Health has joined forces through the Hereditary Coagulopathies Program, aimed at comprehensive care as an essential strategy, optimizing health resources and improving the quality of life of patients, caregivers and families. Since hemophilia is a chronic condition, it requires constant monitoring and specialized care, which makes it essential to organize an efficient flow of care integrating the health care network. The aim of this study is to map scientific production regarding the panorama of strategic guidelines for public policies for Hemophilia in global regions