Primary juvenile fibromyalgia. Psychological adjustment, family functioning, coping, and functional disability

1997/04/01 by Graham J. Reid, Bianca A. Lang, Bianca Lang +1 · 27 citations
Medicine · #Pediatric Pain Management Techniques #Childhood Cancer Survivors' Quality of Life #Fibromyalgia and Chronic Fatigue Syndrome Research

paper · doi:10.1002/art.1780400423

Abstract

OBJECTIVES: 1) To determine the importance of psychological adjustment and family functioning in primary juvenile fibromyalgia by assessing these factors in children with fibromyalgia and in their parents, compared with children with juvenile rheumatoid arthritis (JRA) and with pain-free control children and their parents. 2) To examine which of these factors predict functional disability. METHODS: Fifteen children in each of the 3 study groups, and their parents, completed self-report questionnaires and pain diaries. A medical evaluation of each child was performed, including assessment of tender points by palpation and by dolorimetry. RESULTS: All children in the fibromyalgia group met the Yunus and Masi criteria for fibromyalgia, and 11 met the American College of Rheumatology criteria. There were almost no significant group differences in the children's or parents' psychological adjustment, ratings of family functioning, or coping strategies. Significant group differences in functional disability, pain, fatigue, tender point threshold, and control point tolerance were found. A number of the psychological adjustment, pain, fatigue, and coping variables were significantly associated with functional disability. CONCLUSION: The notion that fibromyalgia is a psychogenic condition is not supported by these results. Fibromyalgia is associated with disability of a magnitude comparable to that of other chronic pain conditions. Disability among children with fibromyalgia or JRA is a function of the children's psychological adjustment and physical state, and of the parents' physical state and method of coping with pain.

Citations

• Juvenile primary fibromyalgia syndrome. A clinical study of thirty‐three patients and matched normal controls
• The american college of rheumatology 1990 criteria for the classification of fibromyalgia

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• Temperament and stress response in children with juvenile primary fibromyalgia syndrome
• Social functioning and peer relationships of adolescents with juvenile fibromyalgia syndrome
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• Anxiety, mood, and behavioral disorders among pediatric patients with juvenile fibromyalgia syndrome. [europepmc]
• "Just be in pain and just move on": Functioning limitations and strategies in the lives of children with chronic pain. [europepmc]
• "I can't be what I want to be": children's narratives of chronic pain experiences and treatment outcomes. [europepmc]
• Actigraphy-based physical activity monitoring in adolescents with juvenile primary fibromyalgia syndrome. [europepmc]
• Parent perceptions of adolescent pain expression: the adolescent pain behavior questionnaire. [europepmc]
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• Juvenile primary Fibromyalgia Syndrome: epidemiology, etiology, pathogenesis, clinical manifestations and diagnosis. [europepmc]

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• Temperament and stress response in children with juvenile primary fibromyalgia syndrome
• Family factors, emotional functioning, and functional impairment in juvenile fibromyalgia syndrome
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