The adolescent with a chronic condition. Part II: healthcare provision
2004/09/21 by P.-A. Michaud, Pierre Michaud, J.-C. Suris +2 · 26 citations
Health Professions · Medicine · #Adolescent and Pediatric Healthcare #Childhood Cancer Survivors' Quality of Life #Child and Adolescent Health
paper · pdf · doi:10.1136/adc.2003.045377
Abstract
The treatment and management of chronic conditions during adolescence pose specific issues that need to be appropriately handled by health professionals. In this paper, questions related to disclosure of the diagnosis, the management of adherence to therapy, the need for an interdisciplinary network approach, lifestyles' anticipatory guidance and prevention, and the transition into an adult healthcare setting are reviewed. Special areas such as the issue of life threatening diseases and the ethical aspects of the treatment of chronic conditions are also discussed.
Cited by
- Validation of the “Good2Go”: the first French-language transition readiness questionnaire
- Who will care for me next? Transitioning to adulthood with hydrocephalus. [europepmc]
- Improving glycaemic control and life skills in adolescents with type 1 diabetes: a randomised, controlled intervention study using the Guided Self-Determination-Young method in triads of adolescents, parents and health care providers integrated into routine paediatric outpatient clinics. [europepmc]
- Patient-clinician mobile communication: analyzing text messaging between adolescents with asthma and nurse case managers. [europepmc]
- Multiple chronic conditions among outpatient pediatric patients, southeastern Michigan, 2008-2013. [europepmc]
- Family-based treatment with transition age youth with anorexia nervosa: a qualitative summary of application in clinical practice. [europepmc]
- Digital games for type 1 and type 2 diabetes: underpinning theory with three illustrative examples. [europepmc]
- Parents' experiences of caring for a young person with neurofibromatosis type 1 (NF1): a qualitative study. [europepmc]
- Health professionals' and managers' definitions of developmentally appropriate healthcare for young people: conceptual dimensions and embedded controversies. [europepmc]
- Ten years of specialized adult care for phenylketonuria - a single-centre experience. [europepmc]
- Adolescent's subjective perceptions of chronic disease and related psychosocial factors: highlights from an outpatient context study. [europepmc]
- Patient-provider communication in nephrology care for adolescents and young adults. [europepmc]
- Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult care. [europepmc]
- Current opinions and recommendations of paediatric healthcare professionals - The importance of tablets: Emerging orally disintegrating versus traditional tablets. [europepmc]
- Exploring Iranian β-Thalassemia major patients' perception of barriers and facilitators of adherence to treatment: A qualitative study. [europepmc]
- "Be an ambassador for change that you would like to see": a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease. [europepmc]
- A Systematic Review of Transition Readiness in Youth with Chronic Disease. [europepmc]
- Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study protocol. [europepmc]
- Codesigned Shared Decision-Making Diabetes Management Plan Tool for Adolescents With Type 1 Diabetes Mellitus and Their Parents: Prototype Development and Pilot Test. [europepmc]
- Psychosocial functioning in adolescents growing up with chronic disease: The Dutch HBSC study. [europepmc]
- How Do Religiosity and Spirituality Associate with Health-Related Outcomes of Adolescents with Chronic Illnesses? A Scoping Review. [europepmc]
- Guidelines for treating child and adolescent obesity: A systematic review. [europepmc]
- Social, Academic, and Health Status Impact of Long COVID on Children and Young People: An Observational, Descriptive, and Longitudinal Cohort Study. [europepmc]
- Psychosocial implications of rare genetic skin diseases affecting appearance on daily life experiences, emotional state, self-perception and quality of life in adults: a systematic review. [europepmc]
- Defining and Measuring Resilience in Children with a Chronic Disease: a Scoping Review. [europepmc]
- Hereditary angioedema in children: Review and practical perspective for clinical management. [europepmc]
Related