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From Patient Burdens to User Agency: Designing for Real-Time Protection Support in Online Health Consultations

2025/08/01 by Shuning Zhang, Ying Ma, Zhang, Shuning +11 · 2 citations
Health Professions · Psychology · Social Sciences · #Digital Mental Health Interventions #FOS: Computer and information sciences #Human-Computer Interaction (cs.HC) #Mobile Health and mHealth Applications #Privacy, Security, and Data Protection

paper · pdf · doi:10.48550/arxiv.2508.00328

openalex publication_date 2025/08/01 · openalex created_date 2025/10/10 · openalex updated_date 2026/07/28

Abstract

Online medical consultation platforms, while convenient, are undermined by significant privacy risks that erode user trust. We first conducted in-depth semi-structured interviews with 12 users to understand their perceptions of security and privacy landscapes on online medical consultation platforms, as well as their practices, challenges and expectation. Our analysis reveals a critical disconnect between users' desires for anonymity and control, and platform realities that offload the responsibility of ``privacy labor''. To bridge this gap, we present SafeShare, an interaction technique that leverages localized LLM to redact consultations in real-time. SafeShare balances utility and privacy through selectively anonymize private information. A technical evaluation of SafeShare's core PII detection module on 3 dataset demonstrates high efficacy, achieving 89.64% accuracy with Qwen3-4B on IMCS21 dataset.

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